A mother who considered her ‘happy’ and ‘proud’ that the two -year -old son was becoming ‘clumsy’ soon found out that he was really suffering from mental cancer.
Eve, from Western Australia, began to see his ‘healthy’ toddler Charlie’s clumsy panic but didn’t think much about it until he started saying ‘ouchi’ and caught his forehead.
She knew that when she started vomiting several times a day, she was wrong, complaining about headaches permanently, and was very tired and becoming irrational.
Eve told Famil, ‘As a nurse, I put it all in my head and I knew that something had to do with her mind.’
However, the symptoms of Charlie were repeatedly excluded.
He said, ‘I was turned away from the doctors a few times, they told me that they were fine, but I knew he was not.’
Eve and her husband decided that it was time to take her to the Children’s Hospital in Perth, where after only 30 minutes, a neuro surgeon conveyed the scattered news: Charlie’s mind was a cancer tumor.
‘My husband and my husband started crying, and I went to the bathroom to get sick. It was an undeniable horrible feeling. He said, “I felt like my heart was torn.”
Eve was upset when her two -year -old son Charlie was diagnosed with brain cancer
“Despite my intuitive and my gut right, I still couldn’t believe that this could happen to my little boy.”
A few days later, Charlie underwent surgery when doctors found an increase in the size of a small apple on his brain.
Fortunately, 93 % of the tumor was successfully removed, the rest of the areas were left to avoid permanent damage.
The family had to wait a few weeks before their little boy was diagnosed with Group 4 Medlolastoma, which is produced by a type of nerve cell in the back of the brain.
Group 4 is a rating used to describe one of the four different molecular sub -groups of a specific type of aggressive brain found found in children.
Eve reminded, ‘I had this deep sense of fear, and it was like a second wave of despair, as it was happening again.’
“I was shining in the hope that it would be Somi, though I knew the opportunity was incredibly small.”
Charlie’s passing through a major brain surgery and severe treatment was an incredibly challenging challenge for her helpless parents.
Eve said, “Sometimes we felt ourselves, knowing that we are putting it in hell, and instead she felt her suffering and illness, because we do not know the reason.”
Mom said Little Charlie always had a ‘happy, gentle, generous and slightly arrogant’ boy
After a neuro surgeon conveyed the news that Charlie had a tumor on his mind, he went for a big surgery a few days later. Fortunately, 93 % of the tumor was able to be away
“It was amazingly difficult that for nine months our happy, healthy child was wasted in a hospital bed, and did not know that it would work too.”
After nine months of chemotherapy, Charlie had six weeks of radiation of the brain and spinal cord, which requires a common anesthetic every day.
The mother said that her five -year -old child has to overcome many challenges after mental surgery, including how to walk, talk and swallow re -eating.
Now he lives with sustainable side effects from his treatment, which includes hearing loss, difficulty in speech, low concentration, difficulty in harmonizing his movement and needs help to wear clothes.
Eve explained, ‘His brain is also harmed by the radiation used to eliminate the rest of the tumor, so he will struggle all his life academically, and life will always be so difficult for him.’
Unfortunately, Charlie is very young to understand her attractiveness.
Eve said, “She is unaware of any of it, so this burden falls on us as a parent, and we have good and bad days.”
“We do not pay attention to what he can’t do, we focus on what he can do, because every day he is here is a blessing.”
Charlie likes to go daycare and play with his baby brother Teddy
The mother said that her five -year -old child has to overcome many challenges after mental surgery, including how to walk, talk and swallow re -eating.
Charlie, who is now five years old, with his younger brother Teddy, along with his mother and father
Despite her challenges, the mother said her little boy, now a five -year -old kindergarten student, is doing ‘incredible well’.
‘Physically she does not look more different than other children of her age in school. He explained that he was more clumsy, and could not move like another child, but he works so well to maintain them.
‘It needs additional help in the class because it has academic deficit, and it needs a lot of rest during the day. These things will only increase when the effects of radiation on his brain will be more prominent.
‘Charlie will be considered an apology for a five -year mark, so we have four years left. Its tumor type is very aggressive, and it is more likely to fall back. ‘
In the meantime, Charlie will scan MRI every three months.
“So we are currently scanning to make the best hope,” he said.
‘We go through life now very grateful for all special moments, all the memories that make us as a family. We know that things can change at any moment, so we try not to sweat surface surface equipment.
“Thank you to give us difficult days, and we enjoy more than good moments.”
The little boy was diagnosed with Group 4 medullablastoma, a brain tumor that is produced by a type of nerve cell in the back of the brain.
Mom said Charlie, who is now a kindergarten student, is doing ‘incredible well’
By sharing the story of Charlie, the mother hopes she will raise awareness about childhood cancer and highlight the tool that comes to the families.
‘This is a medicine department that requires permanent funding and research so that we have better treatment options for our children. “The treatment he received was never intended to be used on children, but it is the only option we have,” Eve said.
For other parents with cancerous children, the mother said: ‘Don’t be afraid to seek help.
He explained, ‘This is a difficulty because we struggle every day.’
‘There’s a lot of support, and many incredible people and organizations who want to help, so just get to know where you can.
‘We found out that we need it most after the treatment was over, when we needed to try and visit our new life with all its challenges.
“It is like a cancer -suffering baby as you ever join the club in which you never wanted to live, but this is an incredibly supportive club.”
